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Rapporti e pubblicazioni

What is the incidence of cystic fibrosis in Italy? Data from the National Registry (1988-2001)

Bossi A, Casazza G, Padoan R, Milani S; Assemblea Dei Direttori Dei Centri
HumBiol. 2004 Jun;76(3):455-67

Absence of a gender gap in survival. An analysis of the Italian registry for cystic fibrosis in the paediatric age(2011)

Laura Viviani , Anna Bossi , Baroukh Maurice Assael
On behalf of the Italian Registry for Cystic Fibrosis Collaborative Group

Evaluation of a new definition for chronic Pseudomonas aeruginosa infection in cystic fibrosis patients

Tim W.R.Lee, Keith G. Brownlee, Steven P. Conway, Miles Denton, James M. Littlewood
 

ECFS Patient Registry Annual Data Report 
https://www.ecfs.eu/projects/ecfs-patient-registry/annual-reports

 

D. Salvatore, V. Carnovale, F. Majo, R. Padoan, S. Quattrucci, M. Salvatore, D. Taruscio, A. Amato, G. Ferrari, G. Campagna. Disease characterization of people with cystic fibrosis and a minimal function mutation: Data from the Italian registry.

Pediatric Pulmonology. 2021;1–10.

DOI: 10.1002/ppul.25616

 

Padoan RF, Quattrucci S, Amato A, Salvatore M, Salvatore D, Campagna G.

Perinatal outcomes in women with cystic fibrosis: Data from the Italian Cystic Fibrosis Registry.

Acta Obstet Gynecol Scand. 2021;100:1439–1444.

doi: 10.1111/aogs.14190. Online ahead of print

 

D Salvatore, V Carnovale, F Majo, R Padoan, S Quattrucci, M Salvatore, D Taruscio, A Amato, G Ferrari, G Campagna. Disease characterisation of people with cystic fibrosis and a minimal function mutation: data from the Italian registry.

Pediatr Pulmonol. 2021;56(2):442-449.

doi: 10.1002/ppul.25179

 

L Naehrlich, A Orenti, F Dunlevy, I Kasmi, S Harutyunyan, A Pfleger, V Bobrovnichy, S Keegan, G Daneau, G Stoyanova, I Bambir, A Vuki? Dugac, D Tjesic-Drinkovic, P Yiallouros, P Drevinek, M Macek Jr, A Bilkova, H Vebert Olesen, PR Burgel, H Corvol, LLVideau, T Parulava, E Hatziagorou, F Diamantea, A Párniczky, G Fletcher, EF McKone, M Mei-Zahav, R Padoan, M Salvatore, C Colombo, E Aleksejeva, K Malakauskas, M Schlesser, S Fustik, O Turcu, V Gulmans, D Zomer-van, Ommen, A Senstad Wathne, E Bakkeheim, L Wozniacki, L Pereira, L Pop, E Kondratyeva, E Amelina, E Zhekayte, O Simonova, N Kashirskaya, M Rodic, H Kayserova, U Krivec, P Mondejar-Lopez, MD Pastor-Vivero, I de Monestrol, A Lindblad, D Dogru, Y Gokdemir, S Pekcan, H Makukh, K Brownlee, R Cosgriff, E McClenaghan, S Carr, A Zolin, E Lammertyn, A Fox, M Krasnyk, J van Rens, S van Koningsbruggen-Rietschel, A Jung.

Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020 

Journal of Cystic Fibrosis, 2021. 18:S1569-1993(21)00099-0.

https://doi.org/10.1016/j.jcf.2021.03.017

 

SB Carr, R Cosgriff, S Harutyunyan, PG Middleton, R Ruseckaite, S Ahern, G Daneau, L Vicente, R F da Silva Filho, AL Stephenson, SY Cheng, J Melo, H Corvol PR Burgel, L Nährlich, E McKone, C Colombo, M Salvatore, R Padoan, O Abdrakhmanov, V Gulmans, CA Byrnes, E Amelina, E Kondratyeva, E Zhekayte, N Kashirskaya, M Zampoli, MD Pastor-Vivero, P Mondejar-Lopez, I de Monestrol, A Jung, E McClenaghan, K Brownlee, S Rizvi, CH Goss, A Elbert, A Faro, H Gutierrez, BC Marshall. COVID-19 vaccine prioritisation for people with cystic fibrosis.

J Cyst Fibros. 2021;S1569-1993(21)00110-7. 

doi: 10.1016/j.jcf.2021.03.028.

 

R. Padoan, S. Quattrucci, A. Amato, V. Carnovale, D. Salvatore, M. Salvatore, G. Campagna. The Diagnosis of Cystic Fibrosis in Adult Age. Data from the Italian Registry.

Diagnostics 2021, 11(2), 321, https://doi.org/10.3390/diagnostics11020321

 

Padoan R, Carnovale V, Salvatore D, Quattrucci S, Taruscio D, Floridia G, Amato A, Ferrari G, Campagna G and Salvatore M. First and second wave of SARS-CoV2 in Italian Cystic Fibrosis patients: Data from Italian Cystic Fibrosis Registry.

Journal of Cystic Fibrosis, 2021; S1569-1993(21)00027-8. doi: 10.1016/j.jcf.2021.01.008.

 

Salvatore D, Carnovale V, Majo F, Padoan R, Salvatore M, Taruscio D, Amato A, Ferrari G, Campagna G.

Cystic fibrosis with non-G551D gating mutations in Italy: Epidemiology and clinical characteristics.

Pediatr Pulmonol. 2021; 56:442–449. doi: 10.1002/ppul.25179R. 

 

Bain, R. Cosgriff, M. Zampoli, A. Elbert, PR Burgel, SB Carr, C. Castaños, C. Colombo, H. Corvol, A. Faro, CH Goss, H Gutierrez, A Jung, N. Kashirskaya, BC Marshall, J Melo, P. Mondejar-Lopez, I. de Monestrol, L. Naehrlichr, R Padoan, MD Pastor-Viveros, S. Rizvi, M. Salvatore, LVR da Silva Filhot, KG Brownlee, IJ Haq, M. Brodlie. Clinical characteristics of SARS-CoV-2 infection in children with cystic fibrosis: An international observational study.  

Journal of Cystic Fibrosis. 19(6),868-871, 2020. https://doi.org/10.1016/j.jcf.2020.11.021

 

Cosgriff R, Ahern S, Bell SC, Brownlee K, Burgel PR, Byrnes C, Corvol H, Cheng SY, Elbert A, Faro A, Goss CH, Gulmans V, Marshall BC, McKone E, Middleton PG, Ruseckaite R, Stephenson AL, Carr SB; Global Registry Harmonization Group*. A multinational report to characterise SARS-CoV-2 infection in people with cystic fibrosis. 

J Cyst Fibros. 2020;19(3):355-358. doi: 10.1016/j.jcf.2020.04.012.

*Global Registry Harmonization Group: D. Reid, P Wark, G. Daneau, V. Boussaud, G. Brinchault, E. Coirier-Duet, JC Dubus, D Grenet, S de Miranda, L Beaumont, R Kanaan, M Lauraens, C Martin, M  Mittaine, A Prévotat, M Reynaud-Gaubert, I Sermet-Gaudelus, A Tatopoulos, L Nährlich, B Plant, C Gunaratnam, A Jackson, KM de Winter-de Groot, B Luijk, G Wesseling, M Allenby, J Duckers, E Gunn, A Jones, R Ian Ketchell, SL Madge, A Maitra, G Mujtaba, H Rodgers, N Shafi, N Simmonds, K Southern, D Watson, S Rizvi, J Seguin, J Garbarz, K Rosamilia, M Berdella, JA Nick, R Belkin, D Gilmore, K McBennett, R Padoan, M Salvatore

 

Mc Clenaghan E, Cosgriff R, Brownlee K, Ahern S, Burgel PR, Byrnes CA, Colombo C, Corvol H, Cheng SY, Daneau G, Elbert A, Faro A, Goss CH, Gulmans V, Gutierrez H, de Monestrol I, Jung A, Nährlich Justus L, Kashirskaya N, Marshall B, McKone E, Middleton PG, Mondejar-Lopez P, Pastor-Vivero MD, Padoan R, Rizvi S, Ruseckaite R, Salvatore M, Stephenson A, Vicente R da Silva Filho L, Melo J, Zampoli M, Carr SB. The global impact of SARS-CoV-2 in 181 people with cystic fibrosis.

Journal of Cystic Fibrosis. 2020; 19(6):868-871